It’s been one heck of a long week but we are finally home! Jackson spent two nights in the PICU and three nights/four days in a regular room. We were discharged this evening. Needless to say, Jackson is happy to be home.
Jackson has a lot of new hardware in his legs, which will stay in for 1-3 years. The procedure to take it out is insignificant compared to what it took to put it in.
Post-surgery Jackson started on a morphine pump and graduated to alternating Tylenol and oxycodone with Valium for muscle spasms. However, we discovered that Jackson doesn’t cough or clear his secretions when he’s on oxycodone (scary) so we stopped giving it to him; and he has been able to tolerate the pain with the Tylenol.
Jackson had considerable, but expected, swelling in his lower body, which has slightly gone down today. His left cast had to be split to relieve pressure.
Jackson’s new lower body set up has taken some getting used to but we have become more comfortable with it over the past few days. Jackson will be in the double cast/brace set up for 6-8 weeks.
The harness/car seat is interesting. He has to lay flat on a bench and his parachute-like harness is secured with seat belts. This is how we came home from the hospital. I sat on the floor of the van next to him while Josh drove.
If you couldn’t already tell that our week has been stressful, my mom drinking wine should be a big hint (she doesn’t drink).
We are very happy to be home and are looking forward to spending Christmas together as a family. Josh’s parents and my dad have done a great job keeping Luca entertained all week. For example, tonight’s activity was making ninja gingerbread cookies!
We appreciate your continued prayers and positive vibes that the next few weeks go smoothly and that everyone stays healthy.